Care Package for a Chemo Patient

Since I have been diagnosed, several people I know have also been diagnosed with cancer. And it is sad and scary for everyone involved, trust me. Now, in most cases, everyone has been able to get a clean bill of health after only needing surgeries to remove the offending cancer. They can avoid the entire chemo and radiation journey that I'm on (the joys of getting diagnosed with stage 3 Angry Cancer). I am so happy anytime someone gets a clean bill of health!!! And for those of you that have to follow me down this chemo/radiation journey, I am here for you!

However, this has me thinking, what would I do for you or get you if you had to go through chemo? What would I want you to have? This is really an extension of the question of I get asked a lot: What do you need/want? So, I decided to put together this "care package" of things that would help a chemo patient out, based on what I needed the most.

(1) I would take charge of setting up a care calendar for you. Meals? Groceries? Rides? Transportation for your kids? I might need to ask you for email addresses and what your family likes to eat, but it'll be set up and ready to go on a moment's notice. Please don't cook ever again!

(2) Straws and grown-up sippy cups (you know, those cups you can buy from Starbucks with the lid and straw). Seriously, you need straws, I can't explain how vital they are. It's easier to lay in bed and drink if you have lids and straws. And I'll get you at least 3 of the cups...one for water, one for juice, one for ginger ale...because you will want all 3 at the same time.

(3) A case of bottled water for your car. Chemo makes you SO thirsty. Not kidding, there will come a day when you are headed to the doctor, or to brave the germ-infested masses at the store, and you will be dying of thirst! And then you will think I'm a genius.

(4) A goody bag with the new essentials for your purse/car/bedroom (yes, I really do have 3 sets of of everything): Chapstick, Kleenex, hand sanitizer, and lotion (all unscented, of course).

(5) Fuzzy socks (with grippy feet) and nice soft hats. Again, when you need these, you will think I'm a genius. Note to self (and anyone out there using this as a shopping list): KEEP THE TAG ON THE HAT so that the patient will know where to go to get more if it becomes their new favorite clothing item!

(6) A soft blanket or shawl, perhaps hand-crafted with love. Unfortunately, I am not crafty so I would have to get someone to do it for me. I have received several of these and I love them all! And appreciate the ones that were made during a prayer circle/meeting. You can feel the love.

(7) Biotene makes a line of great mouthwashes, toothpastes, mouth gels, etc. Trust me when I say, you will need it all!

(8) Really good salt...the fancy flavored sea salt kind...and lots of it. And probably some awesome spices. I'll even throw in a little baking soda with it and tell you how to keep from losing your taste buds like I did.

(9) I will share my meds with you if your doctor doesn't give you the good stuff. But since you will probably get all kinds of good stuff, I'll make sure to bring you all the boring over-the-counter stuff they forget to mention that you need to get through it: Tylenol, Claritin, Colase, Senakot, Queasy Pops, a variety of stuff to help you sleep...all kinds of fun.

(10) Trashy magazines. As much as I love to read, sometimes my brain isn't functioning and I just want to flip through People or Us magazine. And then not worry if I don't remember reading it.

(11) Restaurant gift cards for you and your family to use. Trust me, even if you don't care, there will be a day where your family desperately wants to go out to eat.

(12) iTunes gift cards. I don't know if you have an iPod, iPad, Kindle app, whatever. But you will need mind-numbing games to play, music to listen to, books you can read without carting around a library, audiobooks in case your eyes go to hell like mine did. Thank you Apple.

(13) I will tell you NOT to shave your head before chemo starts. Sure, go ahead and cut it short, but don't shave it off in dramatic fashion like you see in movies and TV shows. Because if you have hair growing in/stubble when your hair really does start to fall out, your head will hurt. Not any fun.

(14) I will send you cards via snail mail just because. I currently have 4 or 5 people that do this and it is so fun to get these cards. Whether they are sunny, sweet, or funny, it is so nice to receive them. And SO much better than the bills that fill up the mailbox.

(15) I will pay for a subscription to Netflix or Hulu or whatever you want. Trust me, you will become infinitely familiar with the television schedule and you will start to hate every channel.

(16) When you figure out which day(s) is your "bad" day, holler. I will take your kids out of the house (because you might find them to be loud and smelly). Or I'll come over and take care of you and send your family to my house to hang out. Or I'll kick everyone out of your house, shut your bedroom door so you can have peace and quiet, and sit downstairs and read a book and wait for you to need something. Whatever you want that day to look like. I didn't want anyone bothering me because they smelled, but I needed someone in my house to bring me drinks. And I was lucky to have friends and family who took my daughter each weekend so she never really had to know what it looked like when I felt like that. (The teenage boy was often so oblivious that he didn't even notice mom hadn't come out of the bedroom for days).

(17) Every now and then I will ask you what you need. And please, speaking from personal experience, TELL ME. Do you need groceries? Your bathrooms cleaned? A massage (god, not from me, but I'll take up a collection and make sure you get one)? Soup? Ginger Ale? To go for a walk? To get out of the house? Go to a movie? Talk about how crappy life is? Not talk about how crappy life is? Bring. It. On.

This is just some things that I found I needed...and was lucky enough to have people taking care of me. Happy to pay it forward.

In Which I Am Hit By a Truck

I hope that I am not jinxing myself by posting this, but I think I have turned the corner from the first round of chemo. KNOCKING ON WOOD...

The doc warned that the low point would hit at some time over the weekend, and could continue through day 7 (these first chemo cycles are 14 days, so day 1 = chemo, day 2 = shot, day 8 = labs, day 15 = chemo again). Friday morning I was feeling a little dizzy, but this did not last past the morning and the doctor thinks it was probably the residual effects of the meds I took the night before. By Friday evening, I was feeling a little queasy, but nothing too bad. Again, meds to the rescue! The warnings to keep hydrated and keep your stomach full to fend off the nausea were working. 

Saturday morning was a little different. This is when the nausea really started to kick in. No puking (thank God), but NOTHING sounded good. Very hard to keep your stomach full when the thought of every kind of food in your house makes you sick. I subsisted on cranberry juice, Saltines (my new friend), mac-n-cheese (don't ask why this didn't make me sick), and some horrible canned chicken noodle soup. Keith has called a friend and put an order in for her Italian Wedding Soup ASAP! Trying to be helpful, he ran to the store and bought every kind of deli soup that I liked to no avail. Today I hate everything.

And then Sunday around 2am, I realized what the low point really was. By some miracle of God, the nausea meds are still doing their job (in that I am not actually curled up next to the toilet bowl), but I feel so sick. EVERYTHING and EVERYONE smells bad. Not even the Saltines sound good, but I'm gagging them down. To top it off, I feel like I've been run over by a truck...and it backed up over me for a second pass.

The most mundane smells are making me gag. Keith made hashbrowns for the kids for breakfast and I want to kill him (if only I had the energy). The pretzels that everyone is snacking on (which honestly can't be that different than the Saltines) make me want to hurl. And don't get me started on the container of trail mix that Keith opened. 

I've become "that patient." Nothing makes me happy, the drinks aren't hot enough...or cold enough...and don't ask how many times I made Keith heat up the mac-n-cheese.

I consider parental blocking the Food Network at one point. And WHY is every commercial for FOOD? Who knew there would come a time when I would wish for the male enhancement product commercials instead?!

Around 2pm on Sunday, there was a dramatic turnaround. I'm suddenly craving the kids' leftover pizza in the fridge and I convince teenage boy to heat me up a slice (just one, very small, and make sure it's hot). I manage to eat it without gagging, so I'm pretty convinced I've come out of the darkness. 

And then the glorious soup arrives...a vat of it. THANK GOD!

Notes to self for next go-round:
(1) More Saltines on hand
(2) More 7-Up
(3) More cranberry juice
(4) Lots and lots of soups...any version of chicken noodle, or other clear broth type
(5) Even when you think you're feeling better, choosing to watch a movie about cooking/chefs/restaurants NOT A GOOD IDEA. Wait on that until about day 10.