This past weekend I participated in Relay For Life by leading Team Stupid Cancer.
IT WAS AN INCREDIBLE EXPERIENCE!
I had never done a RFL event before so I had no idea what to expect. And it's possible that I wasn't the world's best team captain. But I am so grateful for the friends and family that joined the team. And everyone that stopped by to say "Hello" during the event.
This post would be incredibly long if I wrote about everything, but I just want to include the highlights:
Girl child and some of her friends joined the team!
Teen boy came to visit and walk some laps with his mom. And he didn't die.
Team Stupid Cancer was AWESOME! We raised over $3,500!
Yeah to Lynn who stayed the entire time with me!
Yeah to Shay who came at 3AM and walked through the early morning hours!
Awesome friends who came and walked an hour here and there, or stayed for awhile and put in MANY laps. Next year, we will track our laps walked better.
The luminaria ceremony was incredible! I wish I'd known just how moving it would be. I would've made sure that my whole team was there to experience it. And my friend Senator Andy Hill was the guest speaker for the ceremony so it felt even more special to me.
There was entertainment throughout the event, including a beauty pageant...where the guys did their best imitation of beauty queens. One of the teens I've known since he was very young participated in the event. It was so much fun to watch!
I felt loved all weekend because friends who were not participating kept stopping by to do a lap to two (or more), bring beverages and snacks, and just say hi and cheer us on. THANK YOU!
My survivor friends were out in force!!! Hooray to all of us! Keep up the fight!
Feeling like you missed out? Oh, you did. But not to worry. I will definitely be doing this again, and my goal is to have a HUGE team next year. You can join us!
Thank you to all of you that donated to the cause!
Wednesday, June 11, 2014
Saturday, June 7, 2014
TFIOS
Yesterday, I went to see The Fault in our Stars (TFIOS) movie with a friend. The date had been circled on my calendar ever since the movie release date was announced. I am a HUGE fan of John Green (the author of the book which the movie is based on)...like HUUUUUUGE! As in, I actually have a crush on John Green. I love all his books and read TFIOS long before I was diagnosed with cancer.
But after my diagnosis, I realized that TFIOS really resonated with me as being honest and real. And so, I forced everyone I knew to read it also. Not because it's a "cancer book" but because it's a story that you can get wrapped up in and relate to, that happens to portray being sick in a pretty accurate light.
I could talk ad nauseum about the book, but I wanted to share my thoughts on the movie watching experience. EVERYONE that went to see it was posting on Facebook about how they CRIED AND CRIED and how sad it was and to bring your Kleenex. And because I am an emotional disaster anyway, I was prepared for a variety of reactions.
But here's the thing that's interesting to me. I didn't cry. I'm not even sure that I teared up.
Now, don't get me wrong, when I first read the book years ago, I bawled. Because there's just so much to be happy and sad about in that book and when you reach the end, you've become so invested emotionally that there really is no other option.
But I didn't cry during the movie. And while that seems weird to me, it also kinda makes sense. Because I've lived that story now. And I've cried so many tears for myself during the two years I've been fighting and all the treatments that I went through, I guess there's just not a whole lot left.
And while I was scared that I might have a PTSD panic attack seeing the movie visualized, it didn't happen. I was just glad to BE THERE! And watch one of my all-time favorite books become immortalized on film in an incredible way.
Did I mention I love John Green?
Friday, May 30, 2014
MRI
I promised you that I'd keep you posted when the MRI results came in...
Last Friday, I had my MRI (a Friday before a Holiday weekend...good job planning that. Haven't I learned not to do that???). Then I went out of town to present seminars to librarians on the East Coast.
Back at school on Thursday and Friday of this week, and it dawns on me that I haven't received any phone call with the results yet. Uh oh, is that a good sign or a bad sign? With my luck, you just never know!
Well, the call just came in and the results are...CLEAR! Holy crap! Good news on a Friday? What the heck am I going to do with myself?!
So, everything "looks good" and I've been deemed "good to go" until August (when the next round of scans and blood work are due).
I'll take it! Now time to enjoy the weekend...and the summer ahead!
Relay for Life next weekend! I'm very excited!
Last Friday, I had my MRI (a Friday before a Holiday weekend...good job planning that. Haven't I learned not to do that???). Then I went out of town to present seminars to librarians on the East Coast.
Back at school on Thursday and Friday of this week, and it dawns on me that I haven't received any phone call with the results yet. Uh oh, is that a good sign or a bad sign? With my luck, you just never know!
Well, the call just came in and the results are...CLEAR! Holy crap! Good news on a Friday? What the heck am I going to do with myself?!
So, everything "looks good" and I've been deemed "good to go" until August (when the next round of scans and blood work are due).
I'll take it! Now time to enjoy the weekend...and the summer ahead!
Relay for Life next weekend! I'm very excited!
Sunday, May 4, 2014
Dance for a Cure
This weekend, I was invited to attend the annual Dance for a Cure event. This is an incredible evening of dancing, singing, stories, and speakers to raise money for cancer research.
2014 marked the 10th anniversary of the event and I am so glad that I was there. Terrific dancing by students of all ages, as well as professional troupes, and musicians coming together to put on an amazing show.
Additionally, I learned a new term: Cancer Champion. Several Cancer Champions (survivors) were recognized during the evening. I've decided that I really like this term and might start adopting it. We are champions indeed!
The highlight of the evening for me was the keynote speaker, Dr. Jim Olson of Fred Hutchinson Cancer Research Center. He is leading the charge and making great breakthroughs in RESEARCH to CURE, not just treat. AMEN! This is exactly what we need more of. I was so glad that 75% of the $$$ raised from this event go directly to Dr. Olson and his research. (The remaining 25% goes to the Pete Gross House).
Seriously folks, look him up, see the amazing things that he's doing. Or find another center doing legitimate research looking for a cure and donate. The "Fund-an-Item" at this event went directly to Dr. Olson's lab. Keith couldn't get the cash out of his pocket fast enough. The discoveries being made will hopefully help someone else not have to go through ALL the surgeries I had to.
This is an annual event. PLEASE put it on your calendar for next year! Here's the link to their website so that you can learn the story of the incredible sisters that started this event (and why), and keep updated for the 2015 gala.
2014 marked the 10th anniversary of the event and I am so glad that I was there. Terrific dancing by students of all ages, as well as professional troupes, and musicians coming together to put on an amazing show.
Additionally, I learned a new term: Cancer Champion. Several Cancer Champions (survivors) were recognized during the evening. I've decided that I really like this term and might start adopting it. We are champions indeed!
The highlight of the evening for me was the keynote speaker, Dr. Jim Olson of Fred Hutchinson Cancer Research Center. He is leading the charge and making great breakthroughs in RESEARCH to CURE, not just treat. AMEN! This is exactly what we need more of. I was so glad that 75% of the $$$ raised from this event go directly to Dr. Olson and his research. (The remaining 25% goes to the Pete Gross House).
Seriously folks, look him up, see the amazing things that he's doing. Or find another center doing legitimate research looking for a cure and donate. The "Fund-an-Item" at this event went directly to Dr. Olson's lab. Keith couldn't get the cash out of his pocket fast enough. The discoveries being made will hopefully help someone else not have to go through ALL the surgeries I had to.
This is an annual event. PLEASE put it on your calendar for next year! Here's the link to their website so that you can learn the story of the incredible sisters that started this event (and why), and keep updated for the 2015 gala.
Tuesday, April 29, 2014
The Results are In!
It dawned on me today, after being questioned by numerous people at work, that unless you happened to see the post on Facebook over the weekend, you probably didn't know the results of my latest scans and appointments. Whoops! I forgot to post the news here!
It's been kind of a whirlwind weekend (more on that later), but I wanted to get the word out to all of you that were wondering.
It was a "good news" kind of appointment. Kind of weird actually, because I don't normally have those, but I'm really looking forward to many more of them!
1. Blood work and scans all look good! Well, for the most part. I still need an MRI to confirm these results because several areas not seen by mammogram. (The MRI is not for several weeks though, so stay tuned).
2. Prescription for new meds in hand. These meds still might make me crazy, but at least I'll have a baseline and can compare which med made me the least crazy.
3. Dr. has heard the story of my HORRIBLE experience at the Seattle office through the grapevine and has decided to complain on my behalf in hopes of instituting change for others.
4. Dr. also feels that billing department hasn't been nice to us, and has decided to champion that cause on my behalf also.
5. Reasons why I LOVE my doctors confirmed!
6. We ended the afternoon at a friend's house where we brought lunch in exchange for seeing her twin babies. It was a good day all around!
Doctor did bring up some interesting points, which I am pondering, and may write more about in an upcoming post.
Was the Tamoxifen really making me crazy, or was it that taking it every day was a constant reminder of having cancer? Well, I grant her there might be some credibility to that argument, but I vote CRAZY. Ask anyone, especially anyone forced to live or work with me. CRAZY! And whatever the reason, since I stopped taking it, I'm starting to feel slightly more sane. Will fill the prescription this for the new drug she prescribed and start taking it soon to see if there's a difference.
She's also concerned that my dire need to not live in my house anymore isn't going to make me better. She called it "bringing your muddy shoes to a new house." Dealing with my issues will make me feel better than moving to a new house. Or at least, that's what she thinks. And to this, I respectfully disagree...until proven otherwise. New house, new car, new life...all of it is about celebrating being alive. Embracing the things that are actually important. Simplifying. Enjoying. Finding a new place in the world where I'm not reminded of being sick. Life's too short...time to start living the dream.
So, that's my news for now. Thank you for all your prayers, support, messages of love...
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